Showing posts with label PT. Show all posts
Showing posts with label PT. Show all posts

Wednesday, September 29, 2010

Happy 18 Month Birthday!

Is it just me or can anyone else not believe that Sweet Pea is a year and a half old today! It seems like just a month or two ago that she was a newborn blob and now she is into everything, crawling everywhere and just a roaming disaster girl! Oh how I love her!!!! I was going through old photos today and I was amazed at her transformation! There were even some photos that I wasn't sure it was her or not because she has changed so much.

These past couple months have been amazing with Sweet Pea. She really is learning something new every day. I know that this explosion of new skills will eventually plateau, but boy am I enjoying every day of it while it lasts! The joy that emanates from her when she does something new is beyond words and her Mommy and Daddy are so very proud of every single accomplishment because we know how hard she has been working to achieve them! We love you Sweet Pea!!!!!

Gross Motor Milestones:
Crawling: Sweet Pea's crawling has definitely taken off. It's far from textbook, but she no longer uses her army crawl to get anywhere, it's all hands and knees...or in her case, hands, knee and foot. She uses her right foot to push off and then slides her left leg/knee forward and under her bum. It's an interesting technique, but it works to get her from point A to B to C to D. I love that she decides to go from one room to any other room whenever she feels like it. It's such huge progress!!!! It was just 2 months ago that we had to coax her into moving rooms and we were the only motivation that would make her do it. Now, we can be in one room and she will leave us to go play in another!

Standing: This is another area that has seen huge gains.  She pulls to stand on just about anything that she can grab onto...my legs, couches, tables, etc.  She is trying to do it against walls, but isn't quite there yet.  We definitely need to work on the endurance with her, but I have a few ideas of things to try (thanks to Pat Winders Gross Motor Skills in Children with Down Syndrome book) and will keep you all posted.

Cruising: For those that don't know, cruising is basically walking while holding on to furniture.  We didn't really plan to start working on this milestone, Sweet Pea just started to do it.  She only does it a tiny bit, but since she is doing it without any coaxing from me, I'm beyond thrilled!  On Sunday she stood up at the couch, cruised the 12 inches to my legs and then cruised another 12 inches from my legs to the coffee table where the computer was.  It was slow going, but she did it!  One foot after the other and eventually she got to the computer keyboard which, unfortunately, I had to reward her and let her play with for a few seconds (this is a very dangerous thing as Sweet Pea finds keyboard combinations that we often don't know how to undo).  Since she started to do this on her own I guess I will add it to the list of skills to work on.

Climbing: We live in a one story home with just one 6 inch step separating a room.  Sweet Pea mastered that step all on her own.  We have tried stairs on a play structure at a local park and I think they will work okay, not great because they are hard on the knees, but it is better than nothing.  At home we used the couch to practice climbing and as you saw in this post, she has almost mastered it.  She still doesn't always go far enough forward before trying to sit, but we will continue to work on that with her.  She has also learned how to climb down!  She doesn't always do it, but a couple different times I can tell her to come down and she will go from sitting down to her belly and scoot backwards off the couch!  This little girl really picks things up quickly...when she wants to!

Walking: We have a stroller that we have weighed down and she is using that to take one or two steps.  I am not focusing on this until we get a little better at the standing and cruising, but thought I would include it so we have a starting point.

Language: I don't want to sound like a broken record, but language is another area that she has really been growing quickly in.  While her vocal expressive language isn't doing a lot (only new sound that I can think of is "va"), her signing is making some good strides.  Just yesterday she started to do "more" with her fingers instead of just clapping.  Sometimes it takes a little prompting, but it is so cute to see her do it because she looks at her hands and you can see the wheels turning in her head as she does it.  And the smile that she gives when she does it and we are so proud of her...well that smile just melts my heart!  We are also working on getting her "dog" sign to be down on her thigh instead of on her belly.  She is getting better, but I think it will take a little longer as the practice sessions are much shorter for dog.  The signs that she knows now are: more, all done, eat, please, thank you, bye, dog, book, and she is starting to do baby, up and open.  She can identify her head and can get her mouth about half the time.  In terms of receptive language, she continues to amaze us by what she understands.  It's always amazing to see her comprehend something that we say and actually do what we say.  Doesn't always happen since she can be stubborn, but that is okay.

Eating:  This continues to be a challenging area for us as it seems to be for many parents.  Sweet Pea REALLY wants to be eating what we are eating, but her chewing and swallowing aren't up to par yet.  We have found that ground meat is definitely the easiest for her to manage so we can get enough quantity into her before she is too tired or bored.  Noodles, breads, pancakes, waffles, chips...basically anything carbohydrate related...are huge successes.  Soy yogurt is a fairly consistent hit.  Bananas are hit or miss and we need to find more fruit that she will eat.  Baby food is rarely successful for us, but daycare has pretty good luck so we can at least sneak in her fruit and veggies at daycare.  We have recently brought back in cream cheese, pudding and cottage cheese in small quantities and those are working well so far.  The biggest issue that we are afraid of is an increase in her reflux. 

Weight: 22lbs 2.5oz

Height: 30.5 inches

Therapy:  We are certainly in a transitional period in regards to her therapies.  She started the center based therapy classes last week and will be attending them Monday, Wednesday and Friday mornings.  Speech will remain on Tuesday and Thursday afternoons as we don't have any choices for that.  We have cut PT and OT to once a week for the next couple of weeks and for right now, PT will be Tuesday afternoon and OT will be Thursday morning.  We aren't ready to make a decision on asking for her services to be reduced to once a week for both PT and OT since we don't know how the center based therapy is going to work out yet.

Toys:  The seahorse is still her favorite, but she also loves a book that has buttons that play sounds.  It's a Thomas the Tank Engine book, but I think I will need to get a few more of these as she absolutely loves it!

Sweat Pea-isms:  Her latest adorable trait is her little cackle that she does instead of a full laugh.  She doesn't always do it, but it's becoming more common.  I do love her regular laugh though so I hope that it doesn't disappear, but the cackle is pretty funny.

Sleep:  Knock on wood...this area has improved again.  She has started to sleep through the night again and will often not even wake up for her twilight feedings.  Daddy and Mommy are very, VERY, happy about this change and we hope that it continues!  Mommy will take Sweet Pea for a sleep study in a couple of weeks to try to get an explanation for how restless she is when she sleeps.  Let's hope it isn't anything to worry about.

Overall Health: She has had a cold or allergies or something since Labor Day weekend.  She wakes up extremely congested and does not clear up completely throughout the day.  She has even been coughing up phlegm (TMI...sorry) the past few days which is just lovely.  Hopefully she will get over this soon.  Daddy thinks it is from our mountain trip over Labor Day, but I think it is just coincidence and refuse to blame the gorgeous mountains for these many weeks of aggravation. The heat wave that we had this week (105 when the average temperature for this time of year is 76) gave Sweet Pea heat rash, but it is dissipating as the temperature drops. She isn't letting anything slow her down though!







Thursday, September 16, 2010

Juppy Baby Walker - Product Review

I don't know how many times I've heard people tell me that Sweet Pea (my daughter with Down syndrome) shouldn't use a typical baby walker (you know the kind that they sit in and have wheels) because it teaches them improper walking form, safety issues, etc. If I hear it again I really might scream! So, when I saw this product, the Juppy Baby Walker The Juppy Baby Walker (Pink-Full Lining), I had to get my hands on it and see how it worked. The company was kind enough to send me one to review for you all here!

What is the Juppy Baby Walker?
The Juppy Baby Walker is a non traditional, parent-assisted baby walker used to teach babies how to walk sooner while minimizing dangerous falls. The baby is placed in the seat of the Juppy while mom or dad simply holds on to the straps, while standing upright, to give support to the baby. Typically parents tend to hold their babies by the hands or under the arms to teach them to walk. This causes stress and strain on the lower back of the parent and could cause injuries to the child's arms or joints. The Juppy Baby Walker reduces your pain and eliminates possible injury to your child.

Since children with Down syndrome tend to have looser joints it is especially important to guard against any unintended injuries.  Additionally, by not having the child hold onto your hands you are allowing them to use their arms to help balance like they will be when they are walking without your assistance.  This will not only solve the issue of the child becoming dependent on the parents help (where they refuse to try to stand without holding on to you) but will also allow you to slowly lessen the support that they are receiving without them even noticing!

The package is very cute and makes carrying it around very simple and fashionable.  I can see this becoming a permanent addition in my diaper bag so that I have it when I'm at the park, play dates, doctors offices, anywhere that she is wanting to try to walk, but isn't ready yet.  Definitely can't take a typical baby walker with you!  The product comes in either blue or pink

Sweet Pea is just starting to enjoy standing for extended periods of time (1-2 minutes) at the age of 17 months.  I am not expecting her to be trying to walk for a few months still, but I think that this product will also help her learn to stand without needing me to be hunched over supporting her.  I'm pregnant and not looking forward to trying to hold her upright as my belly grows.  The Juppy Baby Walker might just solve that issue!  As you can see in the photos of Sweet Pea below, she is actively watching her feet and figuring out what to do and she can't do that in typical walkers.  Her arms are also free to move as she wants to help her learn to balance on her own without holding onto someone as a crutch.



I'm very excited to have my own Juppy Baby walker as it has already become a staple in my diaper bag.  It's very small and folds up neatly into a little silk bag that it ships with.  The one thing I would change about it would be to have the Juppy be able to fold into an attached pocket so that I didn't need to keep track of the bag, but that is a minor inconvenience for the ease of travel and use with this product.  Here is a picture of it inside the bag...after my using it so you know that it really does go back into the bag:



Here is a video that Juppy has put together showing the Baby Walker in use.  I highly recommend this to anyone who expects to have to work a lot with their child in order to get them ready to walk independently.  I know this is going to save me!



If you want a Juppy Baby Walker for yourself or for a friend you can purchase it through Amazon and if you do it from the link below a portion of the profits that this site makes will be donated to Down Syndrome Research and Treatment Foundation (DSRTF).

Sunday, January 24, 2010

Sunday Thoughts

This entry may not be of much interest to my family and friends, but if anyone from the DS community ever reads this they might be able to use something from it...

This morning Sweet Pea and I went to a playgroup that we attend monthly that is for kids with DS. It's at a local therapy center and so they have a swing, lots of mats for easy rolling, a ball bin, etc. They have a couple therapists that volunteer their time and it's always been very fun and informative. Today was no different.

We start the group with circle time and they sing a couple of songs. Then they broke into two groups (walkers and non-walkers) and we started in the room with the mats. We asked many questions of the PT and she showed me a few new tricks. She hasn't seen Sweet Pea in a couple of months and was very happy with the progress that she is making. Then we went into the other room with the big swing hanging from the ceiling and we were able to have Sweet Pea sit in the swing and then kneel in the swing. She loves swinging so it was a lot of fun. Swinging is so good for our kids as it is a whole sensory experience within itself. The PT that was in this room taught me how to hold her while we swing with her on regular swings. Let's see if I can explain it...

I would have sat on the swing and held her in my lap looking out so that she could see what was going on. The PT informed me that by doing this I would be allowing her to not use any muscles to hold herself up because she would just lean against me. Her recommendation was to have her sit facing me with either her legs around my waist or just sitting on one of my thighs with her legs hanging down. I should have my hands on her torso and lower them down as she gets better at balancing as we swing. Since there is a park nearby that has swings I am excited to try this out soon.

The other really cool thing that they did with Sweet Pea was put her on this 18"x18" skateboard type thing on casters. They rolled her all around while they held her waist and watched how she reacted when they would change direction and her balance would need to adjust. She did great! They then rolled her up a ramp and back down it and she loved it and was maintaining her balance really well. Once she gets more stable sitting on it they would have had her do it on all fours. It's something to think about recreating here at home. Here is a picture of what it basically looked like.
We like our current therapists, but I always like going to these playgroups because you get a different perspective and can learn a few more tricks to try. One other trick I learned today was how to practice kneeling with Sweet Pea. She currently sits on her feet a fair amount when we try kneeling, but she did push up a little today when we were doing it. The PT said that it was good to start that way because it was teaching her to bear weight on her femurs. We should sit with her in kneeling position using the couch with the cushion removed to allow her to hold on for support. She will then eventually be sitting upright with both her thighs and torso in a straight line. Once she can do that, then we should bring one foot up and have her down on one knee (as in a man proposing position). Alternate which leg you use so that they both get utilized. Eventually, she would then be ready to pull to stand from that position. We are learning how to break skill down into much smaller steps and it's amazing how quickly success can come once you do that. It takes persistence, but we always try to make the work we do with her be fun so she isn't really aware that she is working.

Disclaimer: I am not a PT or OT or any type of therapist...just a mom who is trying to share some of what she's learned to help others. Consult your own therapist before trying any of this.

Friday, January 22, 2010

It's a good Friday

Our Fridays start with PT at 7:30am...well truthfully they start whenever Sweet Pea wakes up which is often 5:30am but let's pretend she is nice to mommy and daddy and sleeps in. Ms. C comes to our house and has recently been bringing this big purple peanut. It's an inflated peanut shaped ball. Sweet Pea absolutely loves bouncing on it and so we bring it out once she is frustrated with us trying to work with her. Currently we are working on:
  • Leaning to the side while bending her legs
  • Quadruped (basically on all fours)
  • Kneeling and keeping her knees together while doing this
  • Reaching while twisting her trunk
  • Reaching while in quadruped or kneeling so that her other arm is supporting her weight
  • Supported standing
We weren't making much progress back in December and so we dialed things back in hopes that she wouldn't be screaming through the entire hour session. Daddy & I started being more involved in doing the positioning, listening to her cues and trying to recognize when she is frustrated and when she has really had enough. We also started taking a few steps back in what we were trying to get her to do...Mommy & Daddy would read their "Gross Motor Skills in Children with Down Syndrome" book and follow the examples for the precursor steps to the skill that we were trying to develop. The very first weekend of this step back brought us tremendous progress and it's been continuing ever since. She stays in quadruped for 30+ seconds now and is showing great strides in the side sitting and supported standing. She now gets through about 30 minutes of the session without any real fighting. The remaining 30 minutes can be a struggle, but we call it a day when it's gotten to be too much. Daddy & I are happier and we believe Sweet Pea is happier as well.

Here are some pictures from tonight of her bending her knees (some more than others) and reaching for her ball & piano. She likes to do these things on her own and we have to learn to sit back and let her. When we try to bend her leg she stiffens it immediately. I think that once we show her it a few times she gets the idea in her head and will try it out when she is good and ready. Stubborn little girl...hmm...wonder who she got that from?